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Father to Paddle 200 Miles to Raise Awareness for Rare Disease

In July 2016, Rich Wygand’s first child, Luke, was born with a rare genetic disorder causing severe muscle weakness called Nemaline Myopathy (NM). Rich is planning to paddle 200 miles on his stand up paddle (SUP) board from Lake Worth Beach to Key West, Florida in June of 2018 in an effort to raise awareness and funds for the rare disease that affects his son.

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